Two Peds goes undercover at your local pharmacy

Photo by Lexi Logan

Picture the Mission Impossible theme song in your head… da da da DUM DUM da da da DUM DUM dadada…dadada…dadada…DA DA! Keep this background music playing as you read.

Recently, Two Peds in a Pod® went undercover as two unsuspecting moms surveying the scene on the shelves of a local chain pharmacy, seeking to uncover what medicines, ointments, and therapies avail themselves to the unsuspecting consumer. Today we break open the case.

All medication labels have an “active ingredient” list. This list contains the actual medicine that acts on your child’s body to hide symptoms or cure a condition.  Read this list carefully so that you know what you are actually giving your child. For example, Flu-Be-Gone claims it “cures the aches and cough of flu and helps your child sleep better.” In order to know just what is actually in Flu-Be-Gone, you need to read the active ingredients. Included might be acetaminophen (brand name Tylenol), a fever reducer and pain reliever, and diphenhydramine (brand name Benadryl), allergy medicine that has the common side effect of causing drowsiness and has some mild anti-cough properties. Notice neither active ingredient actually kills the flu germ. Additionally, you may already have these two medications in your medicine cabinet, or you might have already given your child diphenhydramine recently and giving Flu-Be-Gone would overdose your child.

Also note, diphenhydramine is everywhere. If you see the word “sleep” or “PM” in the name of a product, you will usually find diphenhydramine in the active ingredient list.

Now, let’s hone in on your choices for the anti-itch therapy, hydrocortisone. When your child’s health care provider advises treating an itchy bug bite, poison ivy, or allergic rash with hydrocortisone, make sure that the ACTIVE INGREDIENT in the product is “hydrocortisone 1%.” Hydrocortisone comes as a cream, ointment, spray, or stick (looks like a glue stick) and can have aloe, menthol, or other ingredients thrown in as well. Don’t bother with anything less than maximum strength. Regular strength is 0.5% and is generally ineffective.  Also, keep in mind that while ointment is absorbed a bit better, it is more greasy/messy than cream.

Don’t be fooled into thinking products with the same brand name contain similar active ingredients. Also, do not depend on your doctor to necessarily know the difference between the all the formulations. We noticed that the same brand name pain reliever, such as Midol, can have different active ingredients depending on which one you choose. Midol Teen contains acetaminophen, Midol liquid gels contains ibuprofen, and Midol PM contains acetaminophen and diphenhydramine.

Let’s talk bellyache. Did you know that kids should not take adult pepto bismol because it has a form of aspirin in it? Aspirin may cause Reye’s syndrome, a fatal liver disorder. However, we did see a product called Children’s Pepto Bismol and guess what the active ingredient is? It is calcium carbonate, which is the SAME active ingredient as in Tums, and is safe to give kids. However, watch your wallet: the children’s pepto bismol that we found cost $6.00 for a box of 24 tablets. The TUMS that we found cost $4.50 for a bottle of 150 tablets of the same stuff, just in slightly higher dose. Check with your child’s doctor but in most cases, the kids can take the adult dose.

Also, be aware that cold and cough medicine have not been shown to treat colds successfully or even to actually relieve symptoms in most kids. In fact these medicines have potential for harmful side effects, accidental overdose, or accidental ingestion and are just not worth giving your children. However, we found tons of cold and cough medicines marketed for children. Here are the three most commonly used active ingredients:

  • If you see “suppressant” you will likely find “dextromethoraphan” in the active ingredient list.
  • If you see “expectorant” you will likely find “guaifenesin” in the active ingredient list.
  • If you see “decongestant” you will likely find “phenylephrine” in the active ingredient list.

Many products combine two or all three of the above. We ask, even if these ingredients did work well in kids and were not potentially dangerous, what is the POINT of combining a cough suppressant with an expectorant? Can you really have it both ways? (Remember, that Mission Impossible theme is still playing in the background.)

A few other tidbits. “Dramamine,” used for motion sickness, gets broken down in the body to diphenhydramine, that allergy medicine that we already talked about. So look at cost differences when choosing a motion sickness medicine. Both have the same side effect: sleepiness.

Many cough drops contain corn syrup and sugar. This is the same stuff lollipops are made of, so just call a candy a candy and keep your child’s throat wet with the cheaper choice, if you choose to do so.

Finally, we found one “natural children’s cough medicine” which claimed that it is superior because of its “all natural ingredients.” The first active ingredient listed? Belladonna. Sure it’s natural because it comes from a plant. So does marijuana. Just because it’s “natural” doesn’t mean it’s safe. Belladonna can cause delirium, hallucinations, and death and in fact has been used in high doses as a poison! Leave the cough medicine on the store shelf, and read our post about other ways to soothe a cough and cold symptoms.

Bottom line:  remember always to check the “active ingredient” list when buying any over-the-counter medication for your children.

As we were wrapping up our mission, one of the pharmacy employees came over to us, raised an eyebrow at our clipboard, and asked, “Can I help you ladies with anything?” We were tempted to answer “YES, can you help us take notes?”  but we just smiled and said “No, we’re fine, thanks. Just checking out what’s available.”

So now, we will don our stethoscopes and come out of hiding, go back into our offices and onto our website. Thanks for tuning in to this episode of Two Peds in a Pod®…. Da da da, DUM DUM da da da, DUM DUM dadada…dadada…dadada…DA DA!!!

Julie Kardos, MD and Naline Lai, MD
©2012 Two Peds in a Pod®

As we head into this year’s cold and flu season, we re-release this post in response to recent questions  about “the best cold medicine for my kid.” Originally posted May 27, 2011




DaDu and Happy Thanksgiving

 

turkeys

 

“DaDu.”

That’s how my oldest used to say “Thank you” when he was about two years old. Now that he is thirteen I find myself still reminding him to say “thank you” when he goes to a friend’s house or to a birthday party or when a friend’s parent drives him to school.

From Two Peds in a Pod®:  We are thankful for our readers, our facebook friends, and our subscribers for continuing to send us ideas and for telling parents around the world about our down-home source of “sound pediatric advice for parents on the go”. We’ll keep writing as long as you all keep reading. 

Today, may you enjoy cramming in folding chairs to your dining room table, the sleepy post Thanksgiving feast lull, and the sight of heaps of children piled onto a tiny couch.

Dadu and Happy Thanksgiving, 

Julie Kardos, MD and Naline Lai, MD
©2012 Two Peds in a Pod®




Gift Ideas by Ages as Well as Stages

 

baby gift cartoonIt’s gift-giving season. Yes, we could write a soppy post about how the best gifts in life are not material. Or that you should donate money to charity in a child’s name. However, sometimes you just want to buy something. To help you find a perfect gift, or at least one a kid will play with this season, we present a review of child development and a corresponding set of gift ideas.

 


0-3 months: Babies this age have perfect hearing and enjoy looking at faces and objects with contrasting colors. Music, mobiles, and bright posters are some age appropriate gift ideas.

 

3-6 months:  Babies start to reach and grab at objects, so they enjoy rattles and toys that are big enough to hold onto and safe enough to put in their mouths- try bright colored teething rings and large plastic “keys.” Because babies learn by mouthing objects, buy your niece some first books made of cloth or vinyl knowing they will be heavily drooled on.

 

6-12 months: Around six months, babies begin to sit alone or sit propped. Intellectually, they begin to understand “cause and effect.” Good choices of gifts include toys with large buttons that make things happen with light pressure.  Toys which make sounds, play music, or cause Elmo to pop up will be a hit. For a nine-month-old old just starting to pull up to standing, a water or sand table will provide hours of entertainment in the upcoming year. Right now you can bring winter inside and fill it with a mound of snow. Buy some inexpensive measuring cups and later in the summer your toddler will enjoy standing outside splashing in the water.

12-18 months: This is the age kids learn to stand and walk. They enjoy things they can push while walking such as bubble blowers, plastic lawn mowers or plastic “poppers” that have little balls inside that pop around when pushed.

 

18-24 months: Kids this age still like to push toys while walking, and although kids can not pedal, they enjoy riding on toys such as big wheels “Fred Flintstone” style. Dexterous enough to drink out of a cup and use a spoon and fork, toddlers can always use another place setting. Toddlers are also able to manipulate shape sorters and toys where they put a plastic ball into the top and the ball goes down a short maze/slide. They also love containers to collect things, dump out, then collect again.

 

2-3 years: To encourage motor skills, offer tricycles, balls, bubbles, boxes to crawl into and out of. Go with crayons over markers because crayons require a child to exert pressure and therefore develop hand strength. Dolls, cars, and sand boxes all foster imagination. Don’t forget those indestructible board books so kids can “read” to themselves.

 

3-4 years: Now kids engage in elaborate imaginary play. They enjoy “dress up” clothes to create characters- super heroes, dancers, princesses, kings, queens, animals. They become adept at pedaling tricycles or even riding small training-wheeled bikes. Other gift ideas include crayons, paint, markers, Play-doh®, or side-walk chalk. Children this age understand rules and turn-taking and can be taught simple card games such as “go fish,” “war,” and “matching.”  Three-year-olds know colors but can’t read- so they can finally play the classic board game Candyland®, and they can rote count in order to play the sequential numbers game Chutes and Ladders®.

 

5-year-olds: Since 5-year-olds can hop on one foot games like Twister® will be fun. Kids this age start to understand time. In our world of digital clocks, get your nephew an analog clock with numbers and a minute hand… they are hard to come by. Five-year-olds also begin to understand charts— a calendar will also cause delight. They can also work jig-saw puzzles with somewhat large pieces.

 

8 years old: Kids at this point should be able to perform self help skills such as teeth brushing. Help them out with stocking stuffers such as toothbrushes with timers. They also start to understand the value of money. The kids will appreciate gifts such as a wallet or piggy bank.  Eight-year-olds engage in rough and tumble play and can play outdoor games with rules. Think balls, balls, balls- soccer balls, kickballs, baseballs, tennis balls, footballs. Basic sports equipment of any sort will be a hit.

 

 


10-year-olds:
Fine motor skills are quite developed and intricate arts and crafts such as weaving kits can be manipulated. Also ten-year-olds value organization in their world and want to be more independent. Therefore, a watch makes a good gift at this age. And don’t forget about books: reading skills are more advanced at this age. They can read chapter books or books about subjects of interest to them.

 

 


Tweens
: Your child now has a longer attention span (30-40 minutes) so building projects such as K’nex® models will be of interest to her, as well as puzzles with hundreds of pieces. This is a time when group identity becomes more important. Sleepovers and scouting trips are common at this age so sleeping bags make great gifts. Tweens value their privacy – consider a present of a journal with a lock or a doorbell for her room.

 

 


Teens
:  If you look at factors which build a teen into a resilient adult, you will see that adult involvement in a child’s life is important. Create opportunities for one-on-one interaction by giving gifts such as a day of shopping with her aunt, tickets to a show with her uncle, or two hours at the rock climbing gym with dad. Teens usually have enough “stuff” anyway.

 

 

However, if you want to give “stuff,” here are some suggestions:

 

 

Since it’s best for kids back to carry the weight of school books on two shoulders (see our post about backpack safety), find your teen a cool backpack.

 

 

Encourage physical activity. Sports equipment is always pricey for a teen to purchase- give the fancy sports bag he’s been eying and encourage physical activity with a gym membership.

 

 

Hunched over the computer is not an ergonomically correct way to study.  Prevent your kids from growing into adults with strained necks and backs by getting a key board and chair set which is kind to their bodies.

Happy shopping.

 

 

 

Naline Lai, MD and Julie Kardos, MD

 

©2012 Two Peds in a Pod®




Arsenic and your food

 

arsenic riceA decade ago, we wondered if arsenic was in pressurized wood-containing playground equipment . Then we worried about the toxin turning up in apple juice . Now recent reports say arsenic is in the US rice supply .

Uh oh.

As an Asian-American I often cook rice for my family, so I emailed my toxicologist sister when the reports of arsenic in rice first surfaced.

“It’s okay,” my sister emailed back, “Just wash/rinse the rice several times. It’s not like we’re drinking water in Bangladesh.”

“That’s it?” I thought to myself and decided to call her. After all, I figured she is one of a small number of board certified medical toxicologists and an author of a paper on arsenic.

“What is arsenic anyway?” I asked when I got her on the line.

“It’s a naturally occurring element,” she said. To be more precise, it’s number 33 on the periodic table. Like other elements such as iron, lead or calcium, arsenic is found in the earth’s crust.

Here’s what  I learned about arsenic:

 

Why did my sister reference Bangladesh in her email? In the 1970’s drinking water
was in short supply in Bangladesh. Contamination of water by sewage and
monsoons lead to diarreheal illness and high infant mortality rates.
Hundreds of thousands of wells were drilled in order by well meaning aid
organizations. Unfortunately, unbeknownst to the drillers, Bangladesh
sits over a pocket of arsenic rich soil. As a result, some estimate one
in five of the drilled wells is contaminated with arsenic.

 

How does arsenic affect humans?

Organic arsenic is not toxic and is found in seafood. The inorganic form of arsenic, however, interferes with AdenosineTri- Phosphate (ATP), which is a building block for cellular energy. When a large amount is ingested at one time, the body goes haywire, causing many vital organs in the body to shut down.

Chronic effects of low amounts of poisoning are more subtle. Exposures to low levels over time are linked to some cancers such as bladder and skin cancer.

How does arsenic enter the body?

By eating or drinking of tainted substances. Rarely, arsenic is inhaled. Absorption of arsenic will not occur via touch.

Can I tell if something is tainted?

No. Arsenic is colorless and tasteless when dissolved in water. In fact, arsenic’s nick name is “Inheritance Powder” because it was used to speed up royal inheritances in medieval and renaissance Europe.

Should I run out and have my kids tested?

No. Arsenic does not accumulate in the body. It moves in and out quickly. A spot test is not meaningful. Think of eating trace amounts of arsenic like eating the charred part of a piece of steak.

 

To lower arsenic levels or any other potential contaminant on food, wash, wash, wash:

-Wash your hands before you prepare food.

– Wash your child’s hands before she eats.

Wash your produce (meat does not need to be washed).

Also, serve a variety of foods to minimize the chances your family will be exposed to a large quantity of any potential toxin found in one food source.

What about rice cereal? Is it safe for my baby?

The jury is still out. For now, limit the amount of rice cereal you give to your baby. For details and the latest updates www.aap.org

 

Tonight my family will be eating ribs and rice…just hold the arsenic.

Naline Lai, MD with Julie Kardos, MD

With thanks to Melisa Lai Becker, MD, director of medical toxicology of the Cambridge Health Alliance

©2012 Two Peds in a Pod®

 




Learn the signs: how to teach your baby sign language

Before babies gain the ability to say, “Mama, please hand me my cup from that table,” they will point at their cup. In other words, babies naturally use their own sign language to communcate. Today, teacher Kacey Slack writes about teaching American Sign Language as a way to help your child communicate before she masters spoken language.

–Drs. Lai and Kardos

 

Have you ever noticed your baby using hand gestures to express her needs? Most babies will raise their arms when they want to be held, wave goodbye, and point to what they need or want. What if your baby could tell you what she wanted before she learns to speak? Teaching babies to sign is simple and beneficial. According to child developmental psychologists Drs. Linda Acredelo and Susan Goodwyn, in Gaining a window into your baby’s mind, “Using signs with babies reduces tears, tantrums, and frustration, allows babies to express needs and share their worlds, enriches interactions between adults and babies and strengthens the parent-child bond, reveals how smart babies are, and increases parents’ respect for them and helps build babies’ self-confidence and self-esteem.”

 

Teaching signs is easy. You can use this link to learn basic signs. First demonstrate the sign while saying the word. You can also guide your baby’s hands if she will allow you. Praise any approximation of the sign. It will take some time before your baby will understand the sign and perform it. Be consistent and repeat the signs as often as possible. The more your baby sees the sign, the better she will understand it and be able to do it herself.

 

When beginning, choose a few signs that are useful to your baby such as “eat,” “more,” and “all done.” These are signs that babies encounter numerous times each day. Once your baby begins to sign, the possibilities are endless. She may want to learn zoo animals or you may want to teach her safety words in order to express if something is hot or cold or if she is hurt. Signing can also be used while reading books with your child. It is a great way to engage her and allow her to interact with literature.

 

You do not need expensive products or costly classes in order to teach sign. Play groups, however, offer parents the opportunity to receive guidance from an instructor, preferably one with experience signing as well as interacting with young children. Play classes also allow your child to interact with other children and learn from babies who may already know how to sign.

 

Helpful Links: the first link shows how to sign many common words.

http://www.aslpro.com/cgi-bin/aslpro/aslpro.cgi

https://www.babysigns.com/index.cfm?id=120

http://www.babies-and-sign-language.com/index.html

 

[youtube https://www.youtube.com/watch?v=WYbJgw9tOfU&w=560&h=315]


Kacey Slack

Independent Certified Instructor

Kacey Slack holds teaching certifications in elementary and special education. She has taught in various classroom settings and is an adjunct professor at Manor College. A mom of a young signing toddler, Ms. Slack is part of the Baby Signs® Program which helps guide other parents through their signing journey. She can be reached through www.babysignsprogram.com/bykacey.

 

© 2012 Two Peds in a Pod®

Croup’s cropping up

We can tell from this past week at the office that croup season has started. DON’T PANIC! Read on to learn what to look for and what to worry about. Please also listen to our podcast on this same subject.

You wake up in the middle of the night to the sound of a seal barking…inside your house. More specifically, from inside a crib or toddler bed. Unless you actually have a pet seal, that sound is likely the sound of your child with croup.

“Croup” is the lay term for any viral illness causing swelling of the voice box (larynx)  which produces a seal-like cough. The actual medical term is “laryngotracheobronchitis.”  In adults, the same viruses may cause laryngitis and hoarseness, but minimal cough. In children the narrowest part of a child’s airway is his voice box. So not only does the child with croup sound hoarse when he talks and cries, but since he breathes through a much narrower opening, when he forces air out with a cough, he will sound like a barking seal. When a kid with croup breathes in, he may produce a weird guttural noise, called “stridor.”

Many viruses  cause croup, including  flu (influenza) viruses. Therefore, a flu vaccine can protect against croup. While no antibiotic or other medicine can kill the croup causing viruses, here are some ways to help your child feel better.

What to do when your child has croup:

Stay calm. The noisy breathing and barky cough frighten children and their parents alike. It’s easier for the child to breathe when he is calm rather than anxious and crying. So, even if you are scared, try to act calmly since children take their cues from their parents.

Try steam. Run the shower high and hot, close the bathroom door and sit down on the bathroom rug with your child and sing a song or read a book or just rock him gently. The steam in the bathroom can help shrink the swelling in your child’s voice box and calm his breathing.

Go outside. For some reason, cool air also helps croup. The more misty the better. In fact, many a parent in the middle of the night has herded their barking, noisy breathing  child outside and into the cold car to drive to the hospital. Once in the emergency room, the parents are surprised to find a happily sleeping, or  wide awake, chatty child, “cured” by the cold night ride.

Run a humidifier. A cool-mist humidifier running in your child’s room will also help. Make her room feel like a rain forest, or the weather on a  really bad hair day, and often the croupy cough will subside. Cool-mist humidifiers in the child’s room are safer than hot air vaporizers because vaporizers pose a burn risk. It’s the mist that helps, not the temperature of the mist.

Offer ibuprofen or acetaminophen. Your child may cough, and then cry, because her throat is sore. Pain relief will make her more comfortable and allow her to get back to sleep.

Who needs further treatment?

Most kids, more than 95%, who come down with croup, get better on their own at home. Typically, croup causes up to three nights of misery punctuated by trips into the cold night air or steam treatments. During the day, kids can seem quite well, with perhaps a slightly hoarse voice as the only reminder of the night’s tribulations. Why croup is worse at night and much better during the daytime hours remains a medical mystery. One theory is, just like ankles swell after one is upright all day, swelling in the voice box increases when people lie down. After the three nights, your child usually just exhibits typical cold symptoms with runny nose, a regular sounding cough, watery eyes, and a possible ear infection at the end. Then brace yourself for next time—kids predisposed to croup tend to get croup the next time a croup causing virus blows into town. But take heart, most kids outgrow the disposition for croup around six years of age.

Some kids do develop severe breathing difficulties. If your child shows any of these symptoms, get emergency medical care:

Turns pale or blue with coughing. Turning red in the face with coughing is not as dangerous.

Seems unable to swallow/unable to stop drooling.

Breathing fails to improve after steam, cool air, humidity, or breathing seems labored– nostrils flare with every breath or chest heaves with every breath—pull up their night shirts to check for this. See this link for an example of labored breathing.

Mental state is altered: your child does not recognize you or becomes inconsolable.

Child is unimmunized and has a high fever and drooling along with his croup symptoms: he may not have croup but rather epiglottitis, most commonly caused by a vaccine-preventable bacteria. This is a separate illness that can be fatal and requires airway management as well as antibiotics in a hospital.

We searched the internet for a good example of what the “seal bark” cough of croup. The best imitation we found is actually the sound of a sea lion. We will have to ask a veterinarian sometime if seals and sea lions get croup. If so, what do they sound like?

Julie Kardos, MD and Naline Lai, MD
©2012 Two Peds in a Pod®

 




Tips on formula feeding

Tips for formula feeding your babyMany families know from the start  they plan to formula feed their babies. For some, this decision is based on the mom’s medical condition which precludes breastfeeding. Some base the decision  on cultural beliefs, some on personal preference. Still others have tried to breast feed but nursing does not work out.

Whatever the reason, any maternal guilt over not breastfeeding should be left behind once the decision is made to bottle feed.  We point out, “Just think of all of those college graduates who were formula fed as infants!”

Here are some tips for formula feeding:

  1. Remember that babies may not be equally hungry at all meals. Sometimes newborns are full after drinking just ½ an ounce, other times they may suck down 2-3 ounces.
  2. Formula takes a little longer to digest than breast milk, so while some formula fed babies eat every two hours, others feed every 3-4 hours.
  3. You only have to sterilize the bottles the first time you use them. After that, washing them with warm soapy water or putting them in your dishwasher will get them clean enough.
  4. If using powder formula, you may mix it with tap water to whatever temperature your baby prefers. If you drink tap water, no need to boil the water first for your baby or to buy bottled water or “nursery water” or any other special gimmicky water. For those adults who routinely boil or filter their own drinking water, continue to do the same for your infant.
  5. When rewarming formula do not put a bottle of formula directly in the microwave Microwaving produces hotspots and most plastic bottles are not microwave safe. The American Academy of Pediatric’s advice is to rewarm a bottle in a bowl of lukewarm water. But, we know in real life, everyone smiles at us and sneaks off to use the microwave. If you must use the microwave, first transfer formula into a microwave safe container, heat for only a few seconds at a time and then mix the formula very, very well and transfer back into a bottle. Before giving the bottle to your baby, test the formula’s temperature on the inside of your wrist. This is all moot if your baby takes formula at room temperature… try room temperature… you never know.
  6. Let your baby decide when she has had enough to eat. Don’t force her to finish up the last drop—this is the infant equivalent of your insisting on a clean plate. Teach your baby to eat when hungry and stop when she is no longer hungry. Parents have to be okay with “wasting” some formula. Make up more than you think she will need and throw out the rest.
  7. Standard FDA-approved cow-milk based formula with iron meets most babies’ needs. Some parents have coupons for one brand over another, or prefer to buy the store brand over the name brands. Fine to toggle between brands or types of formulations (eg ready-to-feed vs. powder).
  8. Do NOT give your infant “low iron” formula, homemade formula, goat milk, or regular cow’s milk. Call your child’s doctor if you are worried that your baby is not tolerating her standard infant formula.
  9. The American Academy of Pediatrics recommends giving babies formula until one year of age, at which time you can transition your baby to whole cow’s milk. No need to go onto the toddler formulas.

Enjoy feeding your child. Hold her close and allow her to study your face as you feed her. Talk or sing during her meals. Formula and
breast milk have the same calorie count and a similar nutrition content. Love and food can come through a bottle. Ultimately, what works within your family is what is right for your family.

Julie Kardos, MD and Naline Lai, MD
©2012 Two Peds in a Pod®

 




Beth: a story of life and hope

 

At this time of the Jewish High Holy Days, Dr. Kardos offers us a glimpse into lessons learned as a doctor in training. This is a true story she wrote years after meeting Beth and until now, had only shared with a few close friends.

Tonight starts Yom Kippur and my two youngest children are asleep in their beds. As my oldest sits in the rocker next to my desk reading the last book in the Lord of the Rings series, my husband relaxes playing a computer adventure game. The Jewish High Holy Days are a time for reflection about the past year. But my mind goes back to a Yom Kippur Eve when I was working as a resident in the Pediatric Intensive Care Unit (PICU) as part of my pediatric training.

Residents work through most holidays, even ones they consider important. This night, I wished I had off, but I consoled myself with knowing that I would be off on Thanksgiving. Luckily I was partnered with Amy, the lead physician in the PICU.

The sickest patient that night was twelve-year-old Beth. She had leukemia and had just started chemotherapy. Because her immune system was weak, Beth was very ill with a bacterial infection in her blood. Despite powerful antibiotics, the infection raised havoc in her body. She developed such difficulty breathing that a tube from a mechanical ventilator was placed down her throat to force air into her lungs. Even the comfort of sleep escaped her. Beth was afraid of what was happening to her body. She refused to accept medicine that could help her sleep because she was so afraid that she would never wake up.

That night, despite her incredibly ill state, she got her period. Usually when a girl’s body is stressed, the body preserves all blood and the periods stop. But hers came, and because her blood cells were so abnormal from a toxic combination of infection, chemotherapy, and leukemia, she began bleeding to death. We transfused her with bag after bag of blood to keep her alive.

In the middle of the night, Beth’s blood pressure suddenly plummeted so we added even more medication. Because my mentor Amy was not certain that Beth would survive the night, we called her family at the hotel near the hospital where they were staying and told them come to Beth’s side. And through it all, Beth refused to sleep. Her eyes always opened in terror whenever we approached her bed. Her face was gray. Her chest rose and fell to the rhythm of the mechanical ventilator, and you could smell the fear all around her.

I stood with Amy just outside Beth’s room as Amy reviewed a checklist for Beth’s care. It went something like: “Ok, we just called blood bank for more blood; we called her family; we called the lab; we called the pharmacy. We are currently attending to all of her problems, we now just have to wait for her body to respond.” She paused,” But you know what?”

“What?” I asked her.

“We need to address her spiritual needs as well. Do we know what religion her family is? They may want a clergy member with them.”

I was startled. In the midst of all the tubes and wires of technology, Amy remembered to summon the human factor in medicine. We looked in her medical chart under “religious preference” and there it was: Jewish.

“Amy,” I said, “of all nights. Tonight is Yom Kippur…the holiest night of the Jewish year.”

I knew that the hospital had a Rabbi “on call” just like they had priests, nuns, ministers, and other spiritual leaders. But that night I was sure that every rabbi in Philadelphia would be at synagogue for Kol Nidre, the declaration chanted at the beginning of the Yom Kippur evening service. We were unlikely to track down a Rabbi.

Despite this, we asked her mother if they wanted us to call a Rabbi for them. She shook her head no. I remember feeling relieved, then guilty that I felt relieved. Amy left to check on another patient. Beth’s mom, dad, and older sister stood together watching Beth. Her sister’s hand lay on her mother’s arm. Her mother’s eyes darted from me to Beth to the mechanical ventilator next to the bed. Beth’s eyes were closed and it was difficult to know if she even knew we were there.

Her family walked out into the hall to talk. Beth at that moment opened her eyes and started tapping on the bed with her foot to get my attention. She couldn’t talk because of the tube down her throat and her hands were taped down with IVs. Yet she reached out with one hand as best she could.

I walked close to her bed so she could touch me and I asked, what is it, Beth?

Her lips formed the words around the breathing tube very deliberately, her body tensing. “Am I going to die?”

All in a split second I am thinking to myself: How do I know/it could very well happen/how can I lie to her/how can I tell her the truth of what I fear could very well happen/how am I going to answer this child?

What I answered was, “Not tonight, Beth.”

She relaxed into her pillow but kept her eyes on mine. I waited to see if she would say anything else, but the effort to ask that one question had exhausted her. I stood, holding her hand, until her family came back into the room. Her eyes followed them to her bed and I left so they could be together.

Beth did survive the night and in fact survived a month in the PICU. She became well enough to be transferred to a regular hospital floor. By this time I was working in a different part of the hospital, but one of the oncologists pointed her out to me.

I don’t know what happened to her in the long term.

So now I tell my oldest child it’s time for him to stop reading and go to sleep, and I walk him to his room to say goodnight. My husband and I decide what time we’ll attend Yom Kippur services tomorrow. Part of me feels joined with Jews everywhere who will also be spending the next day reflecting, praying and celebrating a new year. But mostly, like every year at this time, I remember the sounds and the smells and the fear in the PICU where sickness doesn’t care who your God is or what your intentions are. I remember Amy caring enough to think about a dying child’s family religion, and always, I remember Beth.

Originally posted in fall, 2010

Julie Kardos, MD
© 2012 Two Peds in a Pod ®

 

 




Join us at the Bucks County Children’s Museum

bucks county children's museumWondering about preschool and toddler discipline? sleep? potty training ? emotional well being?

In the Bucks County PA area in October?

We’ll be holding a question and answer session Thursday Oct 11, 10:00am to 10:45 am as part of the first Bucks County Children’s Museum parent outreach series.

The following week on Thursday Oct 18, 10:00am to 10:45am  Emergency Department physician  Jennifer White, MD, answers the question: When should you take your child to the ER?

Sessions are free for adults. Discounted child price of $5. Children museum members free. Child-friendly arts and crafts provided. Baby sitting not available. To register, call the museum directly at 215-693-1290. The museum is located at 500 Union Square, New Hope, PA.

Series presented in conjunction with Doylestown Hospital, Doylestown, PA and The Bucks County Children’s Museum.

Hope to see you there!

Julie Kardos, MD and Naline Lai, MD

©2012 Two Peds in a Pod®





Breastfeeding: the first two weeks

 

breastfeeding cartoon

I always tell new moms that if you can breastfeed for two weeks, then you can breastfeed for two years. The point is, while our species has been breastfeeding for millions of years, sometimes it’s not intuitive. Getting to the two week point isn’t always easy, but once you’re there, you’ll be able to continue “forever.”

So, how to get through those first two weeks of breastfeeding?

Practice. Fortunately, your newborn will become hungry for a meal every two hours, on average, giving you many opportunities to practice. For the first few meals, a newborn can feel full after eating only one teaspoon of colostrum (the initial clear milk). The size of a person’s stomach is the size of his fist. For a baby, that’s pretty small. So relax about not making a lot of milk those first few days.

But remember, your baby’s needs will change and she will start to require more milk. A nursing baby tells the mom’s body to produce more milk by stimulating the breast. Nurse more often and production will increase. Traditionally, moms are told to attempt a feeding every 2-3 hours. But babies do not come with timers, and Dr. Lai tells moms the interval of time between feeds is not as important as the number of times the breast is stimulated. Around 8-12 feedings a day is usually enough to get a mom’s milk to “come in.”

How many minutes should your baby breastfeed at each feeding?

Some lactation consultants advocate allowing the baby to feed on one breast as long as she wants before switching sides. I am more of a proponent of efficiency (I had twins, after all). What works well for many of my patients for the first few days is to allow the baby to nurse for 5-8 minutes on one breast, then break suction and put the baby on the other breast for the same amount of time. If your baby still seems hungry, you can always put her back on the first breast for another five minutes, followed by the other breast again for five minutes. Work your way up to 10-15 minutes on each side once your milk is in, which can take up to one week for some women. Nursing the baby until a breast is empty gives the baby the rich hind milk as well as the initial, but less fatty fore milk. Close mom’s kitchen for at least an hour after feedings. Beware of being used as a human pacifier.

Advantages for this feeding practice:

  1. Prevents your newborn from falling asleep before finishing a feeding because of the activity of changing sides
  2. Stimulates both breasts to produce milk at every feeding
  3. Prevents mom from feeling lopsided
  4. Prevents mom from getting too sore
  5. Allows time in between feedings for mom to eat, drink, nap, use the bathroom, shower (remember, these are essentials of life)
  6. Teaches baby to eat in 30 minutes or less.

I have seen improved weight gain in babies whose moms breast feed in this way. However, if your baby gains weight well after feeding from one breast alone each feeding, or if you are not sore or dangerously fatigued from allowing your baby to feed for a longer time, then carry on!

How do you know if your baby is getting enough milk?

While all babies lose weight after birth, babies should not lose more than 10% of their birth weight, and they should regain their birth weight by 2-3 weeks of life. Babies should also pee and poop a lot (some poop after EVERY feeding) which is a reflection of getting enough breast milk. Your child’s doctor should weigh your baby by two weeks of life to make sure he “makes weight.”

Many good sources can show you different suggestions for feeding positions. Experiment to see which is most comfortable for you and your baby. If you notice one spot on a breast is particularly full and tender, position your baby so that his chin points towards that spot. This may make for awkward positions, but in this way, he drains milk more efficiently from the full spot.

When you first get home with your newborn, if the visitors in your house aren’t willing to do your dishes, then kick them out. It’s time to practice feeding.

Stay tuned for our next post where we address breastfeeding beyond two weeks.

 

Helpful websites:

To find a  lactation consultant near you see the International Lactation Consultant Association

For our moms across the world and the States- La Leche League International and The Children’s Hospital of Philadelphia- breastfeeding tips for beginners

For moms in Bucks, Montgomery, and Philadelphia Counties, Pennsylvania- Nursing Mother’s Advisory Council

 

Julie Kardos, MD and Naline Lai, MD

©2012 Two Peds in a Pod®